For religious and faith formation for those with Down Syndrome and who are not Deaf or Hard of Hearing please visit the Diocesan special needs ministry page. The Catholic Deaf community does do religious and faith formation for anyone who is Deaf or Hard of Hearing and with Down Syndrome in American Sign Language. Please come visit and introduce yourself to our community. We would like to be part of our Down Syndrome group. A Down Syndrome Church is a phone call way. Contact a Down Syndrome Catholic Church.
Resources in Orange County, California:
Down Syndrome Foundation of Orange County (DSF)
18023 Sky Park Circle, Suite F
Irvine, CA 92614
Phone: (949) 298-2020
Email: [email protected]
Down Syndrome Association of Orange County
151 Kalmus Drive, Suite M-5,
Costa Mesa, CA 92626
Phone: (714) 540-5794
Website: DSAOC
Help Me Grow
2500 Red Hill Ave., Suite 290 B
Santa Ana, CA 92705
Phone: (866) GROW-025
Website: HelpMeGrow
Pujols Family Foundation
14252 Culver Drive, Suite 252
Irvine, CA 92604
Phone: (714) 639-0562
Website: PFF
Regional Center of Orange County
1525 N. Tustin Ave.
Santa Ana, CA 92705
Phone: (714) 796-5100
Website: RCOC
Task
3040 Saturn St., #103
Brea, CA 92821
Phone: (714) 533-8275
Website: TASK
UCP of Orange County
980 Roosevelt, Suite 100
Irvine, CA 92620
Phone: (949) 333-6400
Website: UCP
National & International Down Syndrome Resources
National Down Syndrome Congress (NDSC)
Toll Free: (800) 232-NDSC (6372)
Website: www.ndsccenter.org
National Down Syndrome Society (NDSS)
Toll Free: (800) 221-4602
Website: www.ndss.org
Global Down Syndrome Foundation (GDSF)
Phone: (303) 321-6277
Website: https://www.globaldownsyndrome.org
Down Syndrome Education International (DSEI)
United Kingdom
Telephone +44 (0)300 330 0750
Website: www.dseinternational.org
Down Syndrome Education USA (DSE USA)
Website: https://www.dseusa.org/en-us/
National & International Down Syndrome Resources
National Down Syndrome Congress (NDSC)
Toll Free: (800) 232-NDSC (6372)
Website: www.ndsccenter.org
National Down Syndrome Society (NDSS)
Toll Free: (800) 221-4602
Website: www.ndss.org
Global Down Syndrome Foundation (GDSF)
Phone: (303) 321-6277
Website: https://www.globaldownsyndrome.org
Down Syndrome Education International (DSEI)
United Kingdom
Telephone +44 (0)300 330 0750
Website: www.dseinternational.org
Down Syndrome Education USA (DSE USA)
Website: https://www.dseusa.org/en-us/
Educational Resources We Like
We will add content to this page throughout the year, so keep checking back. If you have a favorite resource to share, let us know!
Favorite Online Activities and/or Printable Resources for Students:
- Starfall (Free) – great basic site for online reading and math activities
- The Measured Mom (Free)
- This Reading Mama (Free)
- Sightwords.Com (Free) – collection of sight word games and printable flash cards
- My Just Right Number (Free) – collection of printable games to reinforce early number skills
- School Sparks (Free) – collection of free worksheets for practicing reading and math skills and more
- Interactive Graphic Organizers (Free) – collection of interactive graphic organizers
- Victories ‘N Autism (Free) – collection of visual cue cards and behavior support resources
- Autism Little Learners (Free and for purchase) – collection of social stories and other resources
- ReadWorks ($3 donation unless affiliated with teacher) – comprehension support for K-6 aligned to CCSS
- SuperTeacher Worksheets ($24.95/yearly)
- Have Fun Teaching ($59/yearly)
- Reading A-Z ($115.45 plus tax where applicable/yearly)
Favorite Research & Educational Information:
- Article – 10 Research-Based Tips for Enhancing Literacy Instruction for Students with Intellectual disability
- Down Syndrome Education International
- NDSS/Education Resources
- Center For Applied Special Technology
- Wrightslaw – understanding your student’s rights
- The Curriculum Corner – integrating common core into teaching
- Open Books, Open Doors
- Think Inclusive – articles relating to inclusive practices
- 10 Examples of Inclusion at Work
Favorite Reference Books and/or Electronic Books (eBooks):
- Reading and Writing Development for Children with Down Syndrome (eBook/$10)
- Number Skills For Children With Down Syndrome (eBook/$10)
- Memory Development For Individuals With Down Syndrome (eBook/$10)
- Accessing The Curriculum-Strategies For Differentiation For Pupils With Down Syndrome (online)
- A Reading And Language Intervention For Children With Down Syndrome – Teacher’s Handbook (Book, 2 DVDs & 1 CD/$100)
- Teaching Reading To Children With Down Syndrome (A Guide For Parents And Teachers) (Book/$24.95)
- Teaching Math To People With Down Syndrome And Other Hands On Learners (Book/$29.95)
- Math-U-See (Math Program/Price depends on items purchased)
- Handwriting Without Tears (Handwriting Program/Price depends on items purchased)
- Special Reads For Special Needs (Books/Price depends on items purchased)
Favorite App Listings:
- Moms With Apps – recommended apps for kids
- Educational App Store – more recommended apps, reviewed by teachers
Favorite Resources to Support Access to Grade Level Standards:
- National Center and State Collaborative (Wiki) – tools supporting UDL
- CAST – Universal Design for Learning guidelines, tools and resources
Favorite Resources for School Choice, Classroom Support & Parent/School Communication:
- RMDSA Choosing a School – information about picking a school
- DS Connection – information about picking a school
** Down Syndrome Association of Orange County (DSAOC) provides support, education and activities for children and adults with Down syndrome, and their families.
Down Syndrome Diagnosis Network provides resources and education, as well as connections to other parents, for expecting parents or parents of newborns.
** Down Syndrome Foundation of Orange County (DSF) implements The Learning Program, which uses current research on best practices and effective teaching strategies to improve education for children with Down syndrome.
Health Care Guidelines published by American Academy of Pediatrics; specific checkpoints by age are listed for pediatricians to address with children having Down syndrome.
National Down Syndrome Congress (NDSC) provides information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
National Down Syndrome Society (DSS) is a national advocate for the value, acceptance and inclusion of people with Down syndrome.
- Pujols Family Foundation provides local activities for those with Down Syndrome.
- Risk and Recurrence Risk of Down Syndrome from the Genetics Division, University of Miami School of Medicine
Good reads:
- Missouri Model Is the First American With DS to Represent a Skincare Brand
- Eliminating People With DS Deprives Our Society Of Love And Joy
- 20 Women With DS You Should Know About
- Golfer Makes History as First Person With DS to Enter NJCAA National Championship
- Groom surprises bride during their wedding ceremony with the most thoughtful gesture
- Utah House approves bill banning abortions solely for DS diagnosis
- Meet the man with DS who retired after a 32-year career
- Special Olympics golfer goes viral after making par on one of golf’s most famous holes
- People With DS Are Applying To Be On The Endangered List
- National Geographic’s new photo campaign highlights people with DS
- 12 Businesses Owned by People With DS You Can Support
- Utah, Pennsylvania consider banning DS abortions
- Meet Lucas, The First Gerber Baby Contest Winner With DS
- Ohio Legislature votes to ban aborting DS babies
- Patricia Heaton: ‘Iceland isn’t eliminating DS—they are just killing everyone who has it.’
- Making Waves: Karen Gaffney is a champion for those with DS
- Overcoming our fear of ‘otherness’
- A Brave, New, DS Free World
- Samantha sealed my bond with God’: speaking to parents of children with DS
- No one would hire girl with DS. So she started her own business
- These friends with DS are thriving in the Argentina pizza market
- Spanish video seeks to erase the stigma of DS
- Why We Need ‘Useless’ People
- This surfing school in Chile was created for kids with DS
- The aging of the population with DS is a positive sign
- My son’s DS does not define him
- “See Christmas as never before, as told by Children with DS”
- How having a baby with DS changed this rock star’s music
- My son was diagnosed with DS at birth. Not knowing earlier was a blessing.
- Champion gymnast and model with DS blazes a new trail
- Florida man is 1st person with DS to finish Ironman triathlon
- The Last Children of DS
- Sensational pro-life video: ‘I have loved you for a thousand years…’
Religious Order:
****The Little Sisters of the Lamb | Vatican article on the Little Sisters of the Lamb
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